To celebrate February’s National Heart Month and Rare Disease Day (29 February), Beat SCAD has launched a fundraising event – Scones for SCAD! I will be hosting a coffee morning at my home on Saturday 27 Feb for friends and family, as will many fellow SCADs survivors!
Beat SCAD launched in 2015 and so far, the group involved in setting it up, along with other SCAD survivors have provided an enormous amount of support to people who have just suffered a SCAD and are bewildered and asking ‘why me’. The SCAD support group is fantastic and the charity is working towards funding for more research into why SCAD happens and how it should be treated.
The first thing you do when this happens to you is search for answers, and believe me, I did, and found very little. My GP had never heard of it, and the cardiologist I saw had seen only one other case in his career.
Until recently there was hardly anything known about the disease, but the team at Leicester are learning more all the time, with the help of some willing volunteers (like me) who are happy to be scanned, biopsied and measured!
There’s still a long way to go in raising awareness so that young women are not turned away from A&E because they are ‘too young’ to have a heart attack. I was told it must be indigestion as I looked ‘too healthy’.
February is the first of hopefully many fundraising efforts – let’s beat SCAD!
This is a summary provided by Beat SCAD:
What is SCAD?
Spontaneous Coronary Artery Dissection (SCAD) is a rare heart condition that can’t be predicted or prevented. It affects people with few or none of the normal risk factors for heart disease.
o SCAD can be fatal, cause heart failure, cardiac arrest, require heart bypass surgery, stents or medical management.
o SCAD occurs when a tear or a bruise develops in one of the coronary arteries resulting in a blockage that prevents normal blood flow. This can result in a heart attack.
o SCAD affects mainly women. Around 30% of SCADs occur during or soon after pregnancy.
Menopause, extreme stress and exercise and connective tissue disorders have also been associated with SCAD but as yet we don’t k…now exactly what causes SCAD.
What is Beat SCAD?
Beat SCAD was established by SCAD survivors whose mission is to:
o raise awareness of Spontaneous Coronary Artery Dissection (SCAD) among cardiologists, GPs, emergency staff, cardiac rehab staff and more, as well as SCAD patients, their family and friends
o provide support for SCAD patients, family and friends
o raise funds for research into SCAD